Monday, August 16, 2010

I'm back.. well sort of!

So it has been over a year since I last blogged. So much has happened since last summer. In August of 2009 we put our townhouse up for sale ( it was getting a little tight with having 3 kids and 3 bedrooms)... we were anticipating a long wait before it sold based on the housing market and were totally surprised when we got an offer in about 45 days So by closing we still had not found "our dream home" so we moved everything in to a little tiny apartment ( and a ton of stuff to a storage place). The apartment was horrible to say the very least, and I think we all went in to a slight depression living there! Finally in January we put a bid in on a house that we really liked only it was a short sale home and let me tell short sale means anything but short when it comes to waiting on the bank to give you and answer on your bid.. in March after some haggling back and forth on the price we FINALLY came to an agreement and settled on March 26th 2010 ( also known as Jillian's second birthday!)

Next came the two plus months of painting, reflooring, ripping out bathrooms etc.. and on memorial day weekend we moved out of the terrible apartment and in to out new home. ( I will have to post some pictures later.

At the End of January Alexis started to feel sick so we took her to our family doctor for a check up, after some blood work it turns out her platelets were over doubled of what they should be.. from there were sent to a hematologist at children's hospital and to an infectious disease specialist.. after some more testing we were told she had Llymes disease.. 3 weeks of doxycycline and another couple of tests with zero improvement, the Lymes disease was eliminated as the cause. Over the next few months there were several more appointments more blood work, a cat scan, ultrasound, 2 genetic mutation tests and a bone marrow biopsy. ( The biopsy for me was the worst) For two days I had to wait for the results hoping and praying that the platelet count was not due to a type of myleoprolific or lymphomic cancer) We were told the odds of it being a cancer were 40% (scared the life out of me literally) After all of that and now we are 7 months in to this we still do not have a firm diagnosis other than that if her platelets remain in the millions for an entire year and they do not ever find any type of cancer she will be solidly diagnosed with a blood disorder call Essential Thrombocythemia or ET for short. In a few weeks we have another appointment and yet again more blood work and then a follow up Marrow biopsy in December. so I'm keeping my fingers crossed that things go well.

So much more to blog about as far as the past year goes, but I will have to do a little at a time to try to catch it all up!

3 comments:

Tracy's Porch said...

Wow - you've been through a lot since you last blogged! I've missed your posts and hope to see more. I'll keep Alexis in my thoughts and prayers!

Memories of us said...

Thanks Tracy, I just need to find time somewhere. It has been just completely crazy busy for us. Gracie is adorable by the way... I do check your blog from time to time!

Daily dose of Dana said...

Just catching up on this I will be keeping my fingers crossed too, sorry I didnt get to reading this sooner. I will be praying and keep us updated!!!