CHOP

It's a very long story with what has gone on over the last week...

Jillian started running a fever Sunday afternoon and when she got up from her nap was breathing really heavy and I could feel her heart beating really hard and fast. I called our pediatrician and he seemed to think everything was ok and that that her heart rate and breathing were increased because of the fever.. which he said was a common thing. Monday morning she seemed a little better, her fever was down but we decided to take her to the doctor anyway. He put her on a nebulizer and sent it home with us to do breathing treatments at home every 4 hours. He guessed that she had a common infection called rsv and that this had most likely caused her to get bronchiolitis ( a swelling of the bronchial tubes). Monday night it only got worse, her temp went even higher and the breathing sounded worse even after 2 treatments so we took her to the hospital. They ran some tests, took a chest x ray, did two more breathing treatments and sent us home. Tuesday she was miserable. She slept most of the day, didn't play at all and stopped eating and drinking totally. We were literally trying to force her to drink by squirting juice in to her mouth with a medicine dropper. Wednesday was her follow up appointment with the her doctor. Ed took her in and he sent him back to the hospital.. from they they finally agreed that something was wrong and that she needed to be admitted for more tests and observation. By this time she was dehydrated so they gave her an I.V along with another chest x ray and more breathing treatments. The treatments did nothing!! The doctor decided to start her on oxygen becasue while monitoring her breathing she was up to over 110 breaths in a minute. They noticed some spots on her lungs in the xray and decided that she should be sent to Children's hospital. They took her by ambulance last night and she has been there since. They still are not certain exactly what is going on but the good news is the fever has come down and is now only around 100 degrees. The bad news is she can't breath with out the oxygen tube so she will have to stay until it is all figured out and she can breath on her own. They have given us a couple of possibilities, but none have been right yet. They thought maybe it had gotten so far in to her lungs that she now had pneumonia... but after the radiologist looked at the last x ray... he ruled that out. The test for the RSV came back negative but a test for a different virus came back positive. On top of this she now has a double ear infection! Ed and I are both pretty much freaking out and hope that they will eventually figure out what exactly is causing all of this. Ed refused to leave the hospital tonight or at any point during the day today, so I decided to come home with the older girls, get some sleep and head back in the morning. Hopefully they will know more tomorrow and I can convince Ed to come home and get some rest while I stay with her!

Ed has been really good at sticking by her no matter what they are doing to her, she had a catheter yesterday and I just HAD to leave the room, I have to get away from it or I will go crazy! It's a good thing she has him there! Ed sat up with her all night on Tuesday night with Jillian on his lap becasue he was afraid to lay her down. Everytime we layed her down she would cough and then her breathing would get worse. I get so upset that I can not stand to stay and watch it all! At this point we can't even hold her because there are to many things hooked up to her and if you try to hold her.. things start getting unhooked... it makes me so sad.

I know that some of you that read this are big on prayer and some of you are not, but even if your not just play along and please keep her in your thoughts at least and for anyone that believes in the power of prayer please please say one tonight for her!

I'm confident that she is in a good place and hope that everything will be ok, but then I have this horrible feeling in my stomach that worries me to death! I pray that my mom instinct is wrong and that this is just a viral infection and will run it;s course and go away!